O-106 Enhancing Real-Life Data in Insular Territories
Author(s):
R Houpert, E Cecilia-Joseph, C Montabord, S Quesnels-Crooks , L Gabriel Parra-Lara , E Sylvestre, J Veronique-Baudin
Year of Presentation:
2026
Objective: To describe the design of SAVOIR, an INTERREG Caribbean VI funded project, aimed at laying the
foundations of a shared space for large-scale health data in
the Caribbean and enabling multidisciplinary analyses to
support regional epidemiological preparedness.
Methods: This work presents the design of the SAVOIR project, structured as a regional cooperation initiative funded under the INTERREG Caribbean VI programme. SAVOIR is built on a partnership between the Martinique Clinical Data Warehouse, a Colombian hospital-based registry, and the IARC Caribbean Cancer Registry Hub. The project is designed as a continuum of coordinated activities combining capacity building, data structuring, and applied research. Its methodological framework relies on the mobilisation of multilingual, large-scale, and heterogeneous data sources, including clinical surveillance, epidemiological, environmental, and socio-demographic data, which are currently fragmented and under-exploited across the region. SAVOIR integrates a pool of training modules and reference materials for health and data professionals, aligned with European digital health strategies (2020-2030). Use cases will be adapted to Caribbean contexts to guide progressive development of interoperable data practices and analytical tools.
Results: SAVOIR promotes a pragmatic and progressive, data-driven strategy that articulates academic expertise with a systemic, regional approach. Through targeted training and collaborative projects developed with the IARC Caribbean Cancer Registry Hub, the project strengthens digital health skills and supports the emergence of structuring regional initiatives.
Conclusion: As a scientific cluster, SAVOIR contributes to the establishment of an ethical, regulatory, and governance framework for the use of large-scale health data in an insular context. By fostering stakeholder engagement and regional coordination, the project enhances system resilience and the capacity to respond to public health crises, while stimulating research activity and international collaboration across the Caribbean.