P-44 Inaugural Project to Assess the Burden of Cancer in the Caribbean: Processes, Challenges and Lessons Learned
Author(s):
S Quesnel-Crooks , G Andall-Brereton , F Michels , R Hanisch , A Chao , B Kohler, B Edwards , G Forjaz , N Husbands , L Mery , T Davidson , H Armstrong
Year of Presentation:
2023
Objective: In recognition of the lack of available data on
cancer incidence in Caribbean countries and territories, the
IARC Caribbean Cancer Registry Hub, Caribbean Public
Health Agency (CARPHA) commenced the inaugural surveillance project to assess the burden of cancer in the Caribbean. This manuscript outlines processes used, as well as
the challenges and lessons learned throughout this project.
Methods: Ethical approval was received, and ten population-based cancer registries (PBCRs) were officially invited to participate. Participating registries were required to submit official documentation and incidence data for all complete diagnosis years during the period 2000-2020. Data specifications were provided, and a secure reporting portal was established. The quality of submitted data will be assessed and standardized cancer incidence rates generated. A report on cancer incidence in the Caribbean region will be produced and disseminated.
Results: Nine PBCRs verbally agreed to participate. One cancer registry submitted the required documentation and cancer incidence data. Official documentation and data are outstanding for the remaining registries.
Conclusion: Positive feedback from Caribbean PBCRs indicates a general awareness of the importance of and need for high-quality reports on cancer for the Caribbean region. Administrative requirements for official documentation surrounding PBCR participation have delayed project timelines. Ongoing engagement of staff and capacity building in cancer registries to support file preparation, data cleaning and submission is needed. The learning process to overcome challenges is important for CARPHA and for Caribbean PBCRs. The report on cancer incidence in the Caribbean region is expected by December 2023.